TIME

FB_IMG_1524217757266 (2)Often times when tragedy strikes you are unable to process everything that is going on around you. I feel like time was stolen from us. It sounds a little crazy but other than myself, I didn’t know anyone who loved life as much as my dad. My mom was always helping or taking care of someone whether it was my dad, her kids, loved ones or complete strangers she helped in the community. Through her dementia she still helps others. My heart smiles every time I see her help an elderly person sit down, open the door or give them a hug. Dementia hasn’t taken the delicate fibers of her being. My mom lights up when she sees me, just the other day she started clapping saying that’s my baby with the biggest smile on her face.

Every loss is different. No two parents that have loss a child will feel the same. I dislike when people say, “I know how you feel” when you’ve loss someone or went through something tragic. You don’t know how I feel and it’s ok to be supportive by showing up or checking on me. But some thoughts are shared amongst different losses, most of us probably feel cheated of TIME. You hear it all your life, no one is promised tomorrow and regardless if you believe it or not it’s some people you want around forever. I wanted my parents around forever.

As I stood at my father’s grave on July 11, 2015 I felt cheated. On the same row some plots down is his mother, who passed in 2009. How is it that I was saying goodbye to him so soon when he had buried his mom when he was 56. My dad and I talked about my wedding day, the day I would become a mom and so much more. We always said “we still have a lot of things to do”.

My mom had grew tired of waiting for me to get married, she would whistle at young men to get their attention and point at me. Even though I know how to cook thanks to my parents, she would offer to cook my dish for her church’s singles ministry potluck. She was beyond ready, she had all granddaughters and wanted a grandson. Today even through her dementia she asks me “Are you married” and “Where’s your baby”? Those questions remind me that she’s still in there. Yes she needs supervision all day but my mom who wanted her kids to be happy is still in there.

I’m so thankful that I had a relationship with God before my parents became sick because there is no way I would be sane today without God. Not only was my Dad taken from me, my mom was a year into her Dementia diagnosis and could no longer be left alone. I couldn’t breakdown because she needed me. After my dad’s services we returned to Florida, I slept in his hospital bed for 3 days and she told me “you have one more night in this bed, he wouldn’t want you to be like this”. My heart was so full of emotions in that moment, I was so thankful for that moment of clarity for her to be my loving, nurturing mom that was aware that her child was hurting.

It’s been almost three years since my Dad passed and 4 years since my mom was diagnosed. When I start to feel down about experiencing life without him or not being able to have my mom at certain events, I say thank you Lord for the memories. I wanted more time but I’m grateful for what we had.

Published by The Young Caregiver

I'm telling my story because there was no one in my circle of friends that had ever been in my shoes and I felt alone. I'm also telling my story to encourage and inspire someone that is beginning the toughest season of their life, going through the storm or coming out on the other side. You are stronger than you know.

One thought on “TIME

  1. Artist, Writer, Poet – Usually when I write I have to go back and change sentences up where I’ve gotten too many sentences beginning with “I”. And, then, also I try not to be preachy but to show and tell my experiences and give my take on stuff - just like I was speaking to someone who really cared about what I say. Wordpress blogging is a really cool platform to share life experiences. I like to read about other people’s lives as well. OK, so here’s my “About Me” I am a Christian woman, mother with one child left at home home-schooling 11th grade... grandmother of 2, wife to a man with frontotemporal dementia who is now living in assisted living. I’m an artist who paints in oils and acrylics and sometimes acrylics with oil overlay. I’m a writer and the more I write the more I want to... write! I feel that writing about my life is a purpose I am called to do. Currently I’m giving up sweets which is not for any religious purpose except that I was eating WAY too much of the sweet stuff! So since November 1, 2018 nearly all of my posts have been about this process. The month of October, 2018 I wrote poetry because it was Octpowrimo month. Before that I blogged about my paintings, my art process, and about caregiving my husband who I placed in assisted living the beginning of October, 2018. I love homemaking and organizing and making things work. I don’t know everything but like to learn. I originally wrote The Art of Caregiving, a book about my family’s long suffering, learning, and believe it or not... growing.... (6 years so far as of 2018) through my husband’s early onset behavioral type frontotemporal dementia (bvFTD). I crammed into that book the details of the life we have lived while my still young daughter and I had taken care of my husband. ​ My original Art of Caregiving book was about him, a man with a terminal illness with all his faults and problems. It was less about us. But this new out of the ashes approach for this blog is about living, light, and life. Of course it will be peppered in with real life incidents and dementia difficulties as well as humor. ​ ​Who am I? Wouldn’t we all like to know just who we are? What do I do might be a better question. So, here goes the best answer I can give to both questions. ​ ​I am an artist and have been able to express myself through the difficult days of caregiving by putting my emotions onto canvas. I am drawn to painting rocky and turbulent ocean scenes in between learning to paint peaches, people, street scenes, and pathways through meadows. ​ ​I am a Christian and I love to study the Bible. I host a weekly bible study where we simply read the Bible together. So far we have read Genesis, Exodus, Luke, John, Acts, Romans and 1 and 2 Corinthians. We begin Joshua this afternoon as I write this I am thankful for this study group which makes me have to stay on my toes so I always study up before we come together and read. I have loved to learn different methods to memorize scripture and it is so cool how a scripture verse will come to mind during all kinds of life events to put my mind and heart and spirit on the right path whenever faced with any dilemma. I have many different ways I approach memorization and I am very excited to share them with you. I have a separate page on my blog where I show how I do some of the memory work I do and I have a verse in my back pocket nearly every day I’m working on. ​ ​I am a creative person so I like to do things my own way. Not because, so much, that I am stubborn, but that I like to figure out the best ways to make things in my life work. have approached caregiving in a different way than most. I approach giving up sweets my own way... and it is so far working! Come along with me on my journey and experience my whimsical ways... on the paths where my life twists and turns but always leads me to God. ​ ​
    Artist Caregiver says:

    Thank you for sharing. I just recently had to put my husband in memory care. No one can know how it feels… but people do try to share humanly in others suffering. It helps lift it somehow… not sure how that works except that carrying each other’s burdens starts sometimes by sharing. So, again, thank you for sharing.

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